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Friday, September 23, 2016

Living with Teacher Collins Syndrome - “Wonder” novel by R. J. Palacio

It is a great book to read and learn about life with Treacher Collins syndrome.

 Basia with Renata Golaszewska-Adamczyk's Dolls

Dolls by Polish Artist Renata Gołaszewska-Adamczyk

http://www.rgadolls.com/


Content below comes from Wikipedia 

“Wonder is a children's novel by Raquel Jaramillo, under the penname of R. J. Palacio, published on February 14, 2012. Palacio was compelled to write Wonder after fearing that her younger son (who at the time was three years old) would react badly after noticing a girl with facial birth defects was sitting beside him as they were waiting in line to buy ice cream. Palacio attempted to remove her son from the situation so as not to upset her or the girl's family but ended up only intensifying the situation. NatalieMerchant's song "Wonder" had her realize that the incident could teach a valuable lesson. Palacio was inspired by Merchant's lyrics and she began writing. The book has a released spin-off, 365 Days of Wonder: Mr. Brown's Book of Precepts. In August 2015, the book Auggie and Me was published. A film adaptation is set for release in 2017.

Natalie Merchant - Wonder
Plot of the Book
August "Auggie" Pullman is a 10-year-old living in the fictional neighborhood of North River Heights in Upper Manhattan. He has a rare medical facial deformity, which he refers to as "mandibulofacial dysostosis", more commonly known as Treacher Collins syndrome and a cleft palate. Due to numerous surgeries, Auggie had been home-schooled by his mother, but his parents decide to enroll him in Beecher Prep, a private school, for the start of middle school in the fall.

Auggie visits Beecher with his mother and meets the school director Mr. Tushman, along with three students: Jack Will, Julian Albans, and Charlotte Cody. Although extremely self-conscious and scared of being around kids his own age, Auggie gradually gets used to and even begins to enjoy school. He befriends Jack as well as a girl named Summer Dawson, who sits with him during lunch when no one else would. Julian, however, barely conceals his disgust at Auggie's appearance, avoids him and often makes hurtful remarks. He bullies Auggie and hates him for the way he looks.

During Halloween, when Auggie didn't feel like wearing his Boba Fett costume, he wore a "Bleeding Scream" costume instead. Unrecognized at school, he overhears Jack telling Julian in homeroom he would "kill himself" if he looked like Auggie. Feeling hurt and betrayed by Jack, Auggie wants to quit school, but his 15-year-old sister Via convinces him not to. Auggie confides the incident to Summer. Jack notices that Auggie has become quiet and distant; he asks Summer why, and though she won't divulge the secret, she says "Bleeding Scream" as a hint. At first, he isn't aware that Auggie heard of what he said and believes that he's just avoiding him for no reason, so he starts avoiding him too. In December, however, Jack realizes Auggie had overheard what he said and realizes that he also heard that Jack was pretending to be friends with him, leaving Jack shocked. In science class, Auggie and Jack are partners for a project. When Julian asks the teacher if he could be Jack's partner instead, Jack declines. But when Julian calls Auggie a "freak," Jack punches Julian in the face in retaliation. As a result, Jack is suspended for two days for his actions. Knowing that Julian would get them both in trouble for bad-mouthing Auggie, Jack does not tell Mr. Tushman what happened. Julian's mother says that Auggie does not belong in Beecher Prep, as it is not an "inclusion school", but Mr. Tushman and everyone else disagrees with her. Jack sincerely apologizes to Auggie, saying he didn't mean to say the stuff he said about him, and they become friends again.

Throughout the rest of the school year, Auggie faces many obstacles, mostly due to ringleader Julian encouraging his "gang" to avoid and isolate Auggie and Jack. Julian puts mean notes in Auggie and Jack's locker; Auggie and Jack write back in defense. However, things begin to change during a class overnight Nature Reserve camping trip when Auggie and Jack are attacked by seventh-grade students from another school who insult Auggie. Not only does Jack defend Auggie, but several other classmates: Miles Noury, Henry Joplin, and Amos Conti (formerly part of Julian's crowd) come to his defence and befriend him.

At the graduation ceremony, Auggie is awarded the "Henry Ward Beecher medal" which "honors students who have been notable or exemplary in certain areas throughout the school year." He gets a standing ovation, takes pictures with everyone (something he had always refused to do) and goes back to his house for a party to celebrate. The book ends with his mother whispering in his ear, "You really are a wonder, Auggie."

Main Characters
August "Auggie" Pullman: The main character. His face is deformed due to "mandibulofacial dysostosis" or "Treacher-Collins syndrome", along with other facial malformations. He faces many difficulties when he enrolls in his first year of middle school after being home schooled for many years. In the end, he is able to make new friends and accept himself for who he is.

Olivia "Via" Pullman: August's older sister. She talks about Auggie and the hardships of being a sister of someone who is deformed in Part 2. She truly cares for Auggie and will always defend him. Often, Via feels jealous of the attention Auggie receives because of his deformity. She often scolds herself and feels guilty for feeling this way.

Summer Dawson: One of Auggie's first and best friends. She sat next to him on the first day of school when no one else would. She didn't care what the other students thought of Auggie, and was always very kind to him.

Isabel and Nate Pullman: Auggie and Via's parents. They care deeply about Auggie and Via, but due to Auggie's problems, Via is often unintentionally left out. Isabel and Nate work with Auggie to make sure going to private school instead of being home schooled is ultimately his decision.

Jack Will: August's best friend. Mr. Tushman asked Jack, Charlotte, and Julian to give August a tour of Beecher Prep. At first, Jack did not want to be friends with Auggie because of his facial deformity. He thought it would prevent him from being friends with the "popular kids." He, at first, pretended to be friends with Auggie, but was devastated when August found out, but they become friends again. Later, he comes to genuinely appreciate August for who he is.

Julian Albans: The main antagonist. He dislikes Auggie and tries to convince the other students that if they touch him, they will develop "The Plague." He bullied Auggie and told most of the grade to isolate him, and Jack Will for becoming friends with Auggie. At the end of the story, Julian's parents take him out of Beecher, as they say they don't feel Beecher Prep is an "inclusion school" and they think Auggie shouldn't have been admitted.

Justin: Via's boyfriend. He is somewhat shocked by Auggie's appearance but is very kind to him. He has a main part in "Our Town" with Via at their high school. In his part in the book, he doesn't capitalize his "I"s. He also mentions that he has "tics," especially when he is nervous and describes them as "hard blinks" and "the occasional head pull." This leads the reader to believe that he has a form of Tourette's syndrome. Justin also gets to meet Via's parents. Also, the reason why in Justin's chapters there is no proper punctuation is because he thinks it takes too long to write.

Daisy: Via and August's first dog. She was August's first true friend. She was an old dog, and at the end of the book has to be putdown. August's family then gets a new dog named Bear.

Miranda Navas: Via's friend. Via, Miranda, and Ella were friends. Miranda had recently cut her hair into a bob and dyed it pink, and dressed in a manner that she would have never dressed before. Via is shocked by Miranda's new look, and the two former friends slowly drift apart. Miranda took care of August and thought of him as her own "little brother;" when she went to summer camp, Miranda lied and told everyone August was her brother.

Mr. Tushman: The director of Beecher Prep. He is extremely welcoming and positive towards Auggie throughout the course of the school year. He tries his hardest to make him feel welcome at school. He delivers an important speech at graduation where he says "if every single person in this room made it a rule that wherever you are, whenever you can, you will try to act a little kinder than is necessary - the world would be a better place."
Edward "Eddie" Johnson: The secondary antagonist. He is a 7th grader who bullies August when he goes to a sleepaway camp.

Mr. Browne: Auggie's first teacher in 5th grade at Beecher Prep school. As he makes precepts for the class to ponder Auggie is marveled at these precepts. Mr. Browne wants to give Auggie a good year at Beecher.
Mrs. Garcia: Assistant to Mr. Tushman.

Bear: August and Via's second dog.”

1 comment:

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